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Helen Johnson

Senior Director of Fundraising & Development, National Office at Cystic Fibrosis Foundation

Helen Johnson is the Senior Director of Fundraising & Development, National Office at Cystic Fibrosis Foundation based in United States.

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Contact Information

Last Update
04/29/2021
Business Email
****@****.***
Direct Phone
********
HQ Phone
********
Location
Senior Director of Fundraising & Development, National Office at Cystic Fibrosis Foundation

Current Workplace

Location

United States

Industry

Non-profit Organization Management

Description

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for people with cystic fibrosis, a rare, genetic disease that progressively limits the ability to breathe, causing debilitating lung infections, and ultimately, premature death. Our relentless determination to improve and prolong life has made a dramatic difference in the lives of people with the disease. Sixty years ago, most children with CF died before reaching elementary school, but thanks to Foundation-led advances in research and care, people with cystic fibrosis are living into their 20s, 30s and beyond. Dozens of CF therapies are in development or available to patients because of our work–including Kalydeco—which Forbes called “the most innovative new drug of 2012.” The CF Foundation’s business model has been featured on the front pages of The New York Times and The Washington Post, and is the subject of two Harvard Business School case studies. In 2015, President Obama cited the dramatic progress in treating cystic fibrosis as a powerful example of precision medicine during the State of the Union address. We are steadfast in our commitment to change the course of this devastating disease and continue to invest heavily in science, drug development, and our innovative care model to advance this mission. The CF Foundation also funds and accredits a nationwide network of 120 care centers which provide vital treatments and resources to patients and families. This network has been recognized by the National Institutes of Health as a model of care for a chronic disease and has played a critical role in improving outcomes for people with cystic fibrosis. The CF Foundation, based in Bethesda, Maryland, is a nonprofit, donor-supported organization and an accredited charity of the Better Business Bureau's Wise Giving Alliance. Please visit us at www.cff.org, on Facebook www.facebook.com/cysticfibrosisfoundation or on Twitter @CF_Foundation

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Helen Johnson Work Experience and Education

Work Experience

Senior Director of Fundraising & Development, National Office
Cystic Fibrosis Foundation
Director of Field Management, National Office
Cystic Fibrosis Foundation
Executive Director, So. California, Utah, Nevada Chapter
Cystic Fibrosis Foundation
Assistant Foundation Director
Community Hospital of Long Beach

Education Background

Business, Elementary Education

Long Beach City College

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View Colleagues

Linda Cooney M.S.
Manager, Grants & Contracts at Cystic Fibrosis Foundation
Tricia Benson
Senior Director of Planned Giving at Cystic Fibrosis Foundation
Megan Bradley
Community Partnerships Specialist at Cystic Fibrosis Foundation
Celeste Abell
Director of Special Events at Cystic Fibrosis Foundation
Rob Neville
Member Board of Directors - Central Texas Chapter at Cystic Fibrosis Foundation
Sue Emmert
Special Events Manager at Cystic Fibrosis Foundation

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Helen Johnson

Senior Director of Fundraising & Development, National Office

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Frequently Asked Questions regarding Helen Johnson

What company does Helen Johnson work for?

Helen Johnson works forCystic Fibrosis Foundation

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Helen Johnson’s latest job experience is Senior Director of Fundraising & Development, National Office
President at Cystic Fibrosis Foundation

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Helen Johnson works in the industry of Architecture, Engineering & Design, Construction. ..

Who are Helen Johnson’s colleagues?

Helen Johnson’s colleagues are Linda Cooney M.S., Tricia Benson, Megan Bradley, Celeste Abell, Laura Howard, Rob Neville, Heather Perry, Lora Miller, Keenan Lofton, Sue Emmert.

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Helen Johnson’s role inCystic Fibrosis Foundation is Senior Director of Fundraising & Development, National Office

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Helen Johnson’s business email address is ****@****.***

What is Helen Johnson’s direct phone number?

Helen Johnson’s direct phone number is **** ****

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Helen Johnson’s HQ phone number is **** ****

What is Helen Johnson’s latest education?

Helen Johnson’s latest education in Long Beach City College

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